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FICHES URGENCE et HANDICAP Anémie de Fanconi

ORPHANET

Orphanet, le portail d’information Européen sut toutes les maladies rares, a réalisé une fiche Urgence et une fiche Handicap, toutes les 2 extrêmement complètes qui peuvent vous être d’une grande utilité pour toute hospitalisation, situation d’urgence et pour toute démarche vers les MDPH.

N’hésitez pas à en parler à votre médecin et à toute personne qui vous accompagne dans le suivi de la maladie.

PDF - 1 Mo
Fiche Urgence
PDF - 498.5 ko
Fiche Handicap

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