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Témoignages

Je m’appelle Nicolas, j’ai 14 ans. Je suis, tout comme ma petite sœur de 5 ans Fiona, atteint de la maladie de Fanconi. Ça veut dire que ma moelle osseuse s’est arrêtée petit à petit de fonctionner et qu’elle ne fabrique plus mes globules, mes plaquettes et tous les éléments vitaux de mon sang.

Le témoignage que vous pouvez lire ci-dessous est initialement paru dans un livre recueil de témoignages édité pas l’Alliance maladies rares à l’occasion de leur 10ème anniversaire.

Son titre : « Maladies rares : ils témoignent ». Edité par les Editions Le Manuscrit

Sarah a commencé la patin à glace après sa greffe. Elle adore ce sport et souhaite vous faire partager sa passion (cliquer sur savoir +)

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