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Fanconi dans le monde

Etats-Unis

FARF - Fanconi Anemia Research Fund

www.fanconi.org

Association ancienne et très active. Elle a édité un livre très exhaustif et régulièrement mis à jour pour les familles et les médecins afin de les aider à mieux comprendre et gérer la maladie. Ce livre est téléchargeable ici

La version de 2003 a été traduite en Français : ici

Ils organisent chaque été un meeting pour les familles sur plusieurs jours dans le Maine aux USA où plusieurs chercheurs et médecins sont également invités. Extrêmement convivial et instructif !

Les familles françaises sont toujours les bienvenues à ces rencontres. Enfin, un « symposium » réunit chaque année en automne les médecins et chercheurs du monde entier spécialistes de la maladie.

Canada

Fanconi Canada

site en français

site en anglais


Allemagne

Deutsche Fanconi-Anämie-Hilfe

www.fanconi.de

Association très active également dont le Président, Ralf Dietrich, est investit à 100% pour la maladie depuis bientôt 20 ans !

Seconde association

www.fanconi.info


Royaume Uni et Irlande

www.fanconi.org.uk

Seconde association

Fanconi Anaemia FAmily Support

www.fanconisupport.info

Espagne

www.asoc-anemiafanconi.es

Italie

www.airfa.it

Australie

www.fanconi.org.au

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