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Contacter un médecin

Le choix du ou des médecins est un aspect important de la gestion de la maladie. S’agissant d’une maladie rare, il est impératif que les patients et leur famille se sentent en confiance avec leur médecin.

En plus des coordonnées du centre de référence, vous trouverez ci-dessous une liste de spécialistes qui suivent ou ont déjà suivi des personnes Fanconi.

Sachez en outre que vous pouvez vous faire rembourser votre déplacement au centre de référence à raison d’une consultation annuelle (voir avec votre médecin traitant).

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